- The goals for research and quality assurance include to identify relevant research questions and participate, as an expert group, in research. Moreover, to evaluate ECR-rounds, to explore how patients and parents and be involved an participate in clinical ethics support services and to investigate innovative methods for these services.
- New knowledge can also include surveys in the Nordic countries with regard to differences in law, policies, values attached to truth-telling, the role of parents, collaboration between different health care personnel categories etc.
- A continuous ethical discussion within the WGE will likely also highlight values and arguments in a way that might represent new knowledge To disseminate this knowledge, in the pediatric oncology community and society at large, by educational efforts and publishing results of our work. Below follows a publication list on relevant ethics research work that includes authors who are members of this group”
Bartholdson, C., Billstein, I., Molewijk B. & Pergert. What outcomes of moral case deliberations are perceived important for healthcare professionals to handle moral challenges? A national cross-sectional study in paediatric oncology. BMC Medical Ethics. 2022; 23:108 DOI: 10.1186/s12910-022-00851-3
Weiner, C., Pergert, P., Molewijk, B., Castor, A. & Bartholdson, C. Difficult situations and moral questions raised during moral case deliberations in Swedish childhood cancer care – A qualitative nationwide study. European Journal of Oncology Nursing. 2022; 60:102189. DOI: 10.1016/j.ejon.2022.102189
Ventovaara, P., af Sandeberg, M., Petersen, G., Blomgren, K. & Pergert, P. A cross-sectional survey of moral distress and ethical climate – Situations in paediatric oncology care that involve children’s voices. Nursing Open. 2022 Jul;9(4):2108-2116. DOI: 10.1002/nop2.1221
Bartholdson, C., af Sandeberg, M., Molewijk, B. & Pergert, P. Does participation in ethics discussions have an impact on ethics decision-making? A cross-sectional study among healthcare professionals in paediatric oncology. European Journal of Oncology Nursing. 2021 Jun;52:101950. DOI: 10.1016/j.ejon.2021.101950.
Weiner, C., Pergert, P., Molewijk, B., Castor, A. & Bartholdson C. Perceptions of important outcomes of moral case deliberations: a qualitative study among healthcare professionals in childhood cancer care. BMC Medical Ethics. 2021 Mar;17;22(1):27. DOI: 10.1186/s12910-021-00597-4.
Ventovaara, P., af Sandeberg, M., Räsänen, J. & Pergert, P. Ethical climate and moral distress in paediatric oncology nursing. Nursing Ethics. 2021 Sep;28(6):1061-1072. DOI: 10.1177/0969733021994169.
af Sandeberg, M., Bartholdson, C. & Pergert, P. Important situations that capture moral distress in paediatric oncology. BMC Med Ethics. 2020 Jan;21(1):6. DOI: 10.1186/s12910-020-0447-x.
Schröder Håkansson, A., Pergert, P, Abrahamsson, J. & Stenmarker, M. Balancing values and obligations when obtaining informed consent: Healthcare professionals’ experiences in Swedish paediatric oncology. Acta Paediatrica. 2020 May;109(5):1040–1048. DOI: 10.1111/apa.15010.
Pergert, P., Bartholdson, C., & af Sandeberg, M. The ethical climate in paediatric oncology – A national cross-sectional survey of health-care personnel. Psycho-Oncology. 2019 Apr;28(4):735-741. DOI:10.1002/pon.5009.
Pergert, P., Bartholdson, C., Blomgren, K., & af Sandeberg, M. Moral distress in paediatric oncology: Contributing factors and group differences, Nursing Ethics. 2019 Nov-Dec;26(7-8):2351-2363. DOI: 10.1177/0969733018809806.
Pergert, P., Bartholdson, C., Wenemark, M., Lützén, K., & af Sandeberg, M. Translating and culturally adapting the shortened version of the Hospital Ethical Climate Survey (HECS-S) – retaining or modifying validated instruments, BMC Medical Ethics. 2018 May;19(1):35. DOI:10.1186/s12910-018-0274-5.
Bartholdson, C., Molewijk, B., Lützén, K., Blomgren, K., & Pergert, P. Ethics case reflection sessions: Enablers and barriers, Nursing Ethics. 2018 Mar;25(2):199-211. DOI: 10.1177/0969733017693471.
af Sandeberg, M., Wenemark, M., Bartholdson, C., Lützén, K., & Pergert, P. To change or not to change – translating and culturally adapting the paediatric version of the Moral Distress Scale-Revised (MDS-R), BMC Medical Ethics. 2017 Feb;18(1):14. DOI: 10.1186/s12910-017-0176-y.
Bartholdson, C., af Sandeberg, M., Lützén, K., Blomgren, K., & Pergert, P. Healthcare professionals’ perceptions of the ethical climate in paediatric cancer care. Nursing Ethics. 2016 Dec;23(8):877-888. DOI: 10.1177/0969733015587778.
Bartholdson, C., Lützén, K., Blomgren, K., & Pergert, P. Clarifying perspectives: Ethics case reflection sessions in childhood cancer care. Nursing Ethics. 2016 Jun;23(4):421-31. DOI: 10.1177/0969733015570511.
Bartholdson, C., Lützén, K., Blomgren, K., & Pergert, P. Experiences of ethical issues when caring for children with cancer. Cancer Nursing. 2015 Mar-Apr;38(2):125-32. DOI: 10.1097/NCC.0000000000000130.
Bartholdson, C., Pergert, P., & Helgesson, G. Procedures for clinical ethics case reflections: an example from childhood cancer care, Clinical Ethics. 2014;9(2–3), 87–95. DOI: 10.1177/1477750914546758
Pergert, P. & Lützén, K Balancing truth-telling in the preservation of hope in care: A relational ethics approach, Nursing Ethics. 2012 Jan;19(1), 21-9. DOI: 10.1177/0969733011418551.